juan_pablo_yepez Juan Pablo Yepez 215571613

Life is what you make of it! 🇻🇪


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♡ 172 ✍ 7 Gathering after Papal audience for the #HuntingtonsDisease (HD) community at The residence of Sally Axworthy, British Ambassador to the Holy See. #Thankyou for hosting us. This was a very important day for the HD global community as it was the very first time in history a #Pope publicly recognised the devastating disease and the hardship it causes on those who suffer from it and their families. This event was made possible by the extraordinary effort by #CharlesSabine and the #HDdennomore coalition 👏🏻👏🏻 The fight however is far from over, there is still a lot of work to be done and the HD community needs your help. This community has suffered in the darkness for far too long and its time for that to end. Please take a minute to check www.hddennomore.com and google Huntington's Disease to learn about this terrible condition that affects thousands of people across the globe. Get a hold of your closest Huntington's Disease association and find a way to get involved, donate and/or spread the word. Please let's help raising awareness of HD. Every little helps 🙏🏼#hdawareness #teamhda #huntingtonsdisease #nancywexler #hddennomore #venezuela #maracaibo #rome #europe Reunión después de la Audiencia Papal para la comunidad global de #CoreadeHuntingtons #huntingtonsdisease (HD) en la residencia de Sally Axworthy, Embajadora Británica ante la Santa Sede #Vaticano. #Gracias por recibirnos. Este fue un día importantísimo para esta comunidad ya que fue la primera vez en la historia que un #Papa públicamente reconoció esta devastadora enfermedad y el gran sufrimiento que esta causa en los que la padecen y sus familiares. Este hecho fue posible gracias al extraordinario esfuerzo hecho por #charlessabine y la coalición #hddennomore 👏🏻👏🏻. La lucha sin embargo no ha terminado, todavia hay mucho trabajo por hacer y la comunidad de HD necesita tu ayuda. Esta comunidad ha sufrido en la oscuridad por mucho tiempo y ya es hora de ponerle un fin. Ayudemos a esta comunidad 🙏🏼


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