huntingtonsdisease


ig  instagram

Thank you @hdsalosangeles for putting on a excellent event yesterday. It was amazing to see the efforts that are pushing forward and the global awareness in #HD. So glad I attended this event! #LetsTalkAboutHD #DopeFit #HuntingtonsDisease #SetStriveConquer #HDSA #UCLA #InspireTheWorld #Hope #BillionPoundsDown #LA #Service #HD30Challenge 12 ♡ 0 ✍ May 22

ig  instagram

Lots of hope for HD after getting the chance to meet and hear from the Pope! Don't forget to share with us what gives you hope by tagging us and using #hopeforhd in your Instagram post. #raiseawareness #huntingtonsdisease 46 ♡ 0 ✍ May 22

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#Repost @franciscus with @repostapp ・・・ EN: Jesus taught us that the human person is always precious, always endowed with a dignity that nothing and no one can erase, not even disease. PT: Jesus nos ensinou que a pessoa humana é sempre preciosa, dotada de dignidade que nada e ninguém pode cancelar, nem mesmo a doença. ES: Jesús nos ha enseñado que la persona humana es siempre valiosa, que tiene siempre una dignidad que nada ni nadie le puede quitar, ni siquiera la enfermedad. IT: Gesù ci ha insegnato che la persona umana è sempre preziosa, sempre dotata di una dignità che niente e nessuno può cancellare, nemmeno la malattia. DE: Jesus hat uns gelehrt, dass die menschliche Person immer wertvoll und stets mit Würde ausgestattet ist, die nichts und niemand auslöschen kann, nicht einmal die Krankheit. #huntingtonsdisease, #doençadehuntington, #enfermedaddehuntington 61 ♡ 0 ✍ May 22

ig  instagram

It was a beautiful morning for the HD walk. The walks are always bittersweet; heartbreaking to see the different severities of those with HD but heartwarming to be surrounded by people of the same "tribe". Big thanks to Team Hope for putting on such a lovely event. #huntingtonsdisease #bethechange #teamhope #hdsucks #walkforhd 15 ♡ 1 ✍ May 22

ig  instagram

There's a few months out of the year when the sunset lines up with my bedroom window. Me and spookerduper soaked it up today. ❤️ 47 ♡ 2 ✍ May 22

ig  instagram

Hi everyone, I wanted the chance for you to meet your seller. I'm a happily married newlywed with two boys. Last year we found out that I have #huntingtonsdisease. It's a rare and terminal illness that causes me to no longer work. So I came up with this idea for you all to be able to #shopmycloset. It's a win win. You get adorable and wonderful finds and I'm able to help financially at a hard point in our lives. I love meeting new people and believe there's no dumb question. Feel free to make an offer or ask a question. I look forward to meeting everyone! #meetyourseller #boutique #instagood #instashop #picoftheday 34 ♡ 1 ✍ May 21

ig  instagram

I'm taking back control as of today 😉 I've been sidetracked lately especially with Tony's health and needing to do physio for him now which is time consuming. We've put a better plan in place and accepted help in many different forms so I can focus on ME a little bit more and replenish my mental and physical wellbeing so that I can give more to the children I work with and to be the best wife and caregiver for Tony. "It is not selfish to refill your own cup so that you can pour into others. It's not a luxury, it's essential." Heading back to the gym for some me time today and have started counselling ... this is huge for me, I hate accepting help 🤗 #makingtimetoworkout #gymlife #backontrack #fattofit #weightloss #weightlossjourney #workout #healthynotskinny #plussized #health #myhappyplace #goodforthesoul #wellbeing #metime #doingitforme #fitfam #weightlossmotivation #anxiety #depression #pushingmyself #embracingmyjourney #womenshealth #acceptinghelp #itsokaynottobeokay #progressnotperfection #myjourney #huntingtonsdisease #huntingtonsdiseaseawareness 31 ♡ 1 ✍ May 21

ig  instagram

EN: Jesus taught us that the human person is always precious, always endowed with a dignity that nothing and no one can erase, not even disease. PT: Jesus nos ensinou que a pessoa humana é sempre preciosa, dotada de dignidade que nada e ninguém pode cancelar, nem mesmo a doença. ES: Jesús nos ha enseñado que la persona humana es siempre valiosa, que tiene siempre una dignidad que nada ni nadie le puede quitar, ni siquiera la enfermedad. IT: Gesù ci ha insegnato che la persona umana è sempre preziosa, sempre dotata di una dignità che niente e nessuno può cancellare, nemmeno la malattia. DE: Jesus hat uns gelehrt, dass die menschliche Person immer wertvoll und stets mit Würde ausgestattet ist, die nichts und niemand auslöschen kann, nicht einmal die Krankheit. #huntingtonsdisease, #doençadehuntington, #enfermedaddehuntington Repost @franciscus #AMEN 🙏🙏🙏🙏🙏🙏🙏🙏🙏 18 ♡ 0 ✍ May 21

ig  instagram

Well, I sucked out loud today. Between getting used to new tires (apparently grip throws me off), the rain, and a course that I could just NOT get any flow on, my times were 5 seconds off of where I wanted to be. Still had a ball, and was so happy to help out a friend raise money for #huntingtonsdisease research. Plus, I won a prize, which I never do. 101 ♡ 4 ✍ May 21

ig  instagram

Our bite-sized group for the annual family walk for HD 💙💚 #HD #HDSA #HuntingtonsDisease #Family #TeamMurray #TeamHope 41 ♡ 1 ✍ May 21

ig  instagram

Going through our family photos and found these of my dad when he went to Washington DC for a conference. Amazing to see how my dad was and how proud he is of having served in the military during Vietnam! I am so thankful for my dad and all he sacrificed for our country and for our family! Since he was diagnosed with HD we are reminded everyday of how precious life is and of the memories we had and continue to capture. Life is good! 🙏💙😃 #huntingtonsdiseaseawareness #hdsaawareness #huntingtonsdisease #hdsa #parentwithhdsa #ourfamilystandstogetherhdsa #familyiseverythinghdsa #fightingforacurehdsa #nevergiveuphdsa #usmcveteran #ptsd 18 ♡ 1 ✍ May 21


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