huntingtonsdisease


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Look at these cuties with their new red growth! Love my Japanese maples! 11 ♡ 1 ✍ August 17

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Epic cloud activity today. Find a few trees to frame the free entertainment and let the breeze do the rest... 6 ♡ 1 ✍ August 17

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I am SO excited about the design of my racing shirt for the @chimarathon! Thank you @discover_essenza for your creativity and care in something that means so much to me. I cannot wait to show my pride for this incredible organization on October 8th. #chicagomarathon #running4D #huntingtonsdisease #hdsa 2 ♡ 0 ✍ August 17

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Planning for our 3rd Annual HD North American Camp. Excited to see all the campers tomorrow! #nya #ypahd #huntingtonsdisease #summerfun #powerofyouth 23 ♡ 0 ✍ August 17

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Look what I was gifted! (The Leucocoprinus birnbaumii mushroom in the center!) I planted these succulents a year ago. Slow growing little critters. Top left was taken last year, others were taken today. Anyone interested in a timelapse of the mushroom blooming? I'm battling a bit of hormonal apathy... harder to convince myself it's worth the effort of capturing it. 16 ♡ 1 ✍ August 17

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Do you shop on Amazon? You shop and Amazon gives! 😉 Log into Amazon Smile and into your account as usual. Please choose Help4HD. Thank you so much for your help and Happy Shopping 😊 _______________________________________________________#Help4HD #JHDAwareness #HDAwareness #Recognition #Resource #HDSupport #HDStories #positivequotes #HDcommunity #huntingtonsdisease #Happy #Community #Amazon #AmazonSmile #AmazonPrime #Shopping #Charity #Foundation 123 ♡ 0 ✍ August 17

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Simple things like walking into the mall pushing a stroller end up with injuries. Russell amazingly didn't feel any pain as the ability to experience certain pain is diminished in Huntington's. Thankfully he was only banged up and not seriously hurt, but if he can't feel or tell me we just don't know. After some bandages and homemade brownies later and he was all set. #everydayhd #huntingtonsdisease #falldown #disability #patient 6 ♡ 0 ✍ August 17

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Breathe . Relax . Focus . ✨✨✨ I'm very excited to be able to share #yogatherapy tools and techniques with my community . Now , on my way to the @hdyofeed camp in DC! See you all next week for regular scheduled classes ✌🏼 ✨✨✨ #yogatherapy #yogatherapist #yogateacher #yogainspiration #teamhd #hdawareness #huntingtonsdisease #liveyourpurpose #liveyourpractice #strengthtraining #torontoyoga #torontoyogi #torontofitness #wellnesscoach #wellnesswarrior #vaughanyoga #breathdeep #meditation #practicedaily #fitfam #healthyhabits #livebetter #movewell #yogaeverydamnday 67 ♡ 1 ✍ August 17

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On this day last year, we had a visit from Travis and the research team from ECU to talk about the HEROs 3 exercise research program! . . . . #tbt #huntingtonsdisease #onthisday #hdresearch #huntingtons #ECU #edithcowanuniversity #throwback #throwbackthursday 8 ♡ 0 ✍ August 17

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Brushing up on my autosomal dominate genetic diseases tonight. I've got to get the brain train up and running to full capacity before the semester starts. #genetics #huntingtonsdisease #physiology #anatomy #science #goodreads #study #studygram #studying #college #university 26 ♡ 0 ✍ August 17

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Aww thanks Tay for accepting the #HDBlueHoseCallenge and bringing smiles to so many! Thank you @dbl.shot.mama for sharing! I have had a couple people reach out and that is what #Awareness is all about! Each share can reach someone and bring awareness to this rare neurological disorder! Anyone can participate! Put on your blue clothes and get sprayed with a hose!! #HDSA #huntingtonsdisease #LetsFindACure #Hope #CureHD 💜💙 31 ♡ 1 ✍ August 17

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Just a little project I did a few days ago! Painted a shell for the ones who mean the most to me. The ones who I love unconditionally. The ones that keep me going and keep pushing me to stay strong. The ones I consider my best friends and my family. The ones I couldn't live without. 💙💜 #nya #hdsa #hdsanya #powerofyouth #nationalyouthalliance #hd #huntingtons #huntingtonsdisease #hdsucks #hdfamily #hope #motivation #community 48 ♡ 4 ✍ August 17

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#WCW going to this amazing little lady over here... She's the exclamation mark in the happiest sentence I could ever possibly write😆 Thank you, @misstaylorelise_, for being so selfless, always thinking of others & helping raise awareness for this heart wrenching disease! Let's find a cure💙 #BabyGirl #LA #HuntingtonsDisease #HD #NYA #Awareness #HDBLUEHOSECHALLENGE #Hope #Love #LetsFindACure #BoysInBlue #Dodgers #ITFDB @dodgers @redturn2 @jtfoundation10 @taconazo @ellen_degeneres @theellenshow @highvoltagevaporz Help us make some noise!! 44 ♡ 4 ✍ August 17

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I met up with Bethel and Meagan at the Branch Out offices to talk about Sideshow. You do not want to miss out on this event! Check the link in my bio for more information. 31 ♡ 2 ✍ August 16

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In these times of intense American growing pains it's difficult to remain positive but there are those of us who are always trying to look for the silver lining. That is not a fault in our character. It is a survival tactic. • I am beyond stoked to be participating in this event in my old hometown. Huntington's has given me a reason to live with intention and impermanence but the portion of this journey where I took care of my mother and watched her leave this earth... that portion blew my heart and mind into another dimension. Only those who have been through a similarly traumatic event can grasp the intensity of which you are juggernauted out of yer comfort zone. • If you are in or around Shreveport, look into joining us on the evening of August 26 for a night of moving storytelling. Also, check out the All Y'all podcast for 11 previous events. There's LOTS to listen to. 37 ♡ 3 ✍ August 16

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Thank you Cedars-Sinai Medical Center @cedarssinai for the Shoutout and for featuring my imaging of Induced Pluripotent Stem Cells (IPSC's) on your social channels. . Not only is Cedars-Sinai internationally renowned for the best patient care modern medicine has to offer, but they have a 4,000 piece art collection that includes works by #Picasso, #Warhol and #Hockney. I like to think of my microscopic images of IPSC's as works of art too! 🔬🖼. . . (Photos are microscopic images of IPSC's from my internship in The Brain Program in the Board of Governors Regenerative Medicine Institute at Cedars-Sinai. We explored how brain diseases occur and how we may be able to protect or regenerate brain cells using stem cells.) . . . #stemcell #science #art #womeninstem #womeninmedicine #research #regenerative #medicine #scienceart #huntingtonsdisease #brain #neuroscience #futureofmedicine #futuresurgeon 275 ♡ 19 ✍ August 16


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