hddennomore


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So, about that trip to Rome...Those of you who know me well know about my family's history with Huntington's disease (HD). My mother passed away in 2014 from complications related to HD and 3 of my 4 siblings have tested positive . Pope Francis held a special audience for the Huntington's disease community that featured 26 different countries and I was so very fortunate to attend this inspirational movement. This event, #hddennomore , was about raising awareness for HD as well as removing the stigma that is often associated with HD. Thank you so very much #popefrancis and the entire #hddennomore team. If you want to know more about Huntington's disease, contact hdsa.org. #letstalkabouthd #curehd #vaticancity #popefrancis #curejhd #hdawareness #advocacy #hdsa #vatican #strongertogether #pontiff #pope #rome #hope #roma #papafrancisco #vaticano #knowledgeispower #pontifex #staystrong #solidarity #francesco #familyiseverything #italy #popeaudience 31 ♡ 2 ✍ May 26

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Gathering after Papal audience for the #HuntingtonsDisease (HD) community at The residence of Sally Axworthy, British Ambassador to the Holy See. #Thankyou for hosting us. This was a very important day for the HD global community as it was the very first time in history a #Pope publicly recognised the devastating disease and the hardship it causes on those who suffer from it and their families. This event was made possible by the extraordinary effort by #CharlesSabine and the #HDdennomore coalition 👏🏻👏🏻 The fight however is far from over, there is still a lot of work to be done and the HD community needs your help. This community has suffered in the darkness for far too long and its time for that to end. Please take a minute to check www.hddennomore.com and google Huntington's Disease to learn about this terrible condition that affects thousands of people across the globe. Get a hold of your closest Huntington's Disease association and find a way to get involved, donate and/or spread the word. Please let's help raising awareness of HD. Every little helps 🙏🏼#hdawareness #teamhda #huntingtonsdisease #nancywexler #hddennomore #venezuela #maracaibo #rome #europe Reunión después de la Audiencia Papal para la comunidad global de #CoreadeHuntingtons #huntingtonsdisease (HD) en la residencia de Sally Axworthy, Embajadora Británica ante la Santa Sede #Vaticano. #Gracias por recibirnos. Este fue un día importantísimo para esta comunidad ya que fue la primera vez en la historia que un #Papa públicamente reconoció esta devastadora enfermedad y el gran sufrimiento que esta causa en los que la padecen y sus familiares. Este hecho fue posible gracias al extraordinario esfuerzo hecho por #charlessabine y la coalición #hddennomore 👏🏻👏🏻. La lucha sin embargo no ha terminado, todavia hay mucho trabajo por hacer y la comunidad de HD necesita tu ayuda. Esta comunidad ha sufrido en la oscuridad por mucho tiempo y ya es hora de ponerle un fin. Ayudemos a esta comunidad 🙏🏼 164 ♡ 7 ✍ May 24

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#Hddennomore community members had an opportunity to meet with Pope Francis last Thursday! The Pope delivered to them an amazing message of hope - see the link in our bio to watch. #hddennonore #huntingtonsdisease #popefrancis 18 ♡ 0 ✍ May 23

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Como não se apaixonar por um pastor assim? Ele é humano, bondoso, ele é de Deus. Anyervi da Venezuela tem 13 anos com DH juvenil, ganhou uma camisa do Neymar e esse abraço esperançoso do Papa 😍❤ #foiinesquecivel #euestavalá #elemeolhounosolhos #nuncavouesquecer #obrigadaDeus #hddennomore 29 ♡ 0 ✍ May 22

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Até que fim Brasil, abençoadas e renovadas #foiperfreito #foiinesquecivel #hddennomore #saudadedecasa😍❤ 53 ♡ 0 ✍ May 22

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Desde #Venezuela GRACIAS Juan Pablo 🙏🏼🇻🇪 #Repost @juan_pablo_yepez Humbled and privileged to have met the Pope at the #huntingtonsdisease audience in the Vatican. I asked His Holiness to pray for #venezuela to which he replied "Lo hago hijo mío" 🙏🏻. Please @franciscus keep praying for a quick end to our oppression from a tyrannical and murdering government. #hdawareness #hddennomore #venezuelalibre #blessed #humbled #vatican #popefrancis #rome #italy #photo 🇻🇪 🇻🇦 2115 ♡ 74 ✍ May 20

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"May none of you ever feel you are alone"✝🇻🇦 #hddennomore 107 ♡ 0 ✍ May 19

ig  instagram

Humbled and privileged to have met the Pope at the #huntingtonsdisease audience in the Vatican. I asked His Holiness to pray for #venezuela to which he replied "Lo hago hijo mío" 🙏🏻. Please @franciscus keep praying for a quick end to our oppression from a tyrannical and murdering government. #hdawareness #hddennomore #venezuelalibre #venezuelalucha #blessed #humbled #vatican #popefrancis #rome #italy #photo #sosvenezuela 🇻🇪 🇻🇦 535 ♡ 51 ✍ May 19

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Humbled to be part of such a significant day for the #huntingtonsdisease global community. #hddennomore #hdawareness #venezuela #rome #vatican Obrigado @neymarjr for putting that smile on Anyervi's face. #neymarjr #barca #photo #charlessabine 162 ♡ 0 ✍ May 19

ig  instagram

Nunca vou esquecer o que o Senhor fez por nós nessa cidade maravilhoa ❤😍 agradecer Sempre #hddennomore #HD #buscandoacura #fuibraçadapeloPapa #tudolindo #Deusémaravilhoso 62 ♡ 0 ✍ May 19

ig  instagram

Jesús nos ha enseñado que la persona humana es siempre valiosa,que tiene siempre una dignidad que nada ni nadie le puede quitar,ni siquiera la enfermedad. -Papa Francisco a los enfermos de Huntingtons. #hddennomore #huntingtons 7 ♡ 0 ✍ May 19

ig  instagram

Post show hug for Kate Miner from Pope Frances. This is Epic and such a beautiful moment. 30 ♡ 7 ✍ May 19


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