hdawareness


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Huntington's Post: " Grief, often referred to as anticipatory grief, can be extremely powerful, as those who live with HD and/or JHD know all too well. Anticipating grief, defines it as "a feeling of loss before I die or dreaded event occurs. " to read more of this article, click the link in our bio or visit our website Help4HD.org #Help4HD #Help4JHD #HuntingtonsPost #Grief #HDAwareness #HDStories #Article #Relief 107 ♡ 0 ✍ July 24

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Lake Erie in Ohio looks like the ocean today. #hdawareness #HDSA #Huntingtonsdisease #cure4hd 8 ♡ 0 ✍ July 24

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To all the Warriors in the world fighting a battle of some kind. I post this for the HD and JHD Warriors. Keep fighting and don't lose HOPE. #hdawareness #cure4hdandjhd #WatchingTheirDance #huntingtonsdisease 7 ♡ 0 ✍ July 24

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The Grief of Huntington's Disease. This is a phenomenal article, currently on our Huntington's Post! Link in Bio or you can visit our website Help4HD International #HuntingtonsPost #article #HuntingtonDisease #Grief #HDStory #onlinenews #Love #resources #HDAwareness #unspokengrief #Help4HD #Help4JHD { https://help4hd.org/grief-huntingtons-disease/ } 80 ♡ 0 ✍ July 24

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#Repost She worked hard and is all tuckered out with her crown near by. Huge Shout Out to @shelby_lentz on her big win last night, crowned #MissSpiritofTheState. She sang her heart out. She is also recently featured on #Help4HDLive #Radio {Link in Bio ⬆️ } and shared her journey with #HD and JHD. We are so proud of this shining ⭐️. Thank you for being strong and spreading #HDAwareness #JHDAwareness #Michigan #Help4HD #HDStory #Success #ShelbyLentz 142 ♡ 2 ✍ July 23

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LIFE INTERRUPTED A collaboration of individuals, telling their stories of living with HD. It's received great reviews and it's available on Amazon and Amazon Prime. #LifeInterupted #Novel #collaboration #help4hd #Amazon #AmazonPrime #HDAwareness #Life #HuntingtonsDisease #Family #HDStory 66 ♡ 0 ✍ July 22

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This morning I attended the HDSA Team Hope Walk in Hilliard Ohio. The guys in the picture are Teva Pharmaceutical reps, Mike Morreale and Mo Mulcahy. Yea Austedo!! #HDSA #hdawareness #huntingtonsdisease 17 ♡ 0 ✍ July 22

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Happy to be alive; blessed in so many ways; grateful for everything in my life. #hdawareness #WatchingTheirDance #cure4hd 5 ♡ 0 ✍ July 22

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Happy Saturday! Hope you're having a great afternoon. Did you get a chance to hear our Help4Hd LIVE Radio show this past Wednesday?!? Our beauty queen guest, Shelby Lentz talks about her family with HD, sister with JHD and her own journey, going through the testing process and her results. You will love hearing her story.link is in bio, today. Check out our archived episode on iTunes. #Help4Hd #Help4JHD #Help4HDLive #Help4HDLiveRadio #HDAwareness #MissGreaterKalamazoo #HDStories 87 ♡ 2 ✍ July 22

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• KNOWLEDGE IS POWER • Aug15, 2017 at 12pm on. •Go Webinar • The link is in the Bio for today and it's included on the flyer. Please feel free to DM us if you have any questions or if you need assistance registering. You won't want to miss this! #KnowledgeIsPower #Cure4HD #Cure4JHD #huntingtonsdisease #webinar #Education #Medication #drugaccess #Help4HD #HDAwareness 92 ♡ 0 ✍ July 22

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Hello. I'm twenty-two years old, and I have an autoimmune disorder/skin condition. This is my story.⠀ ⠀ My disorder causes certain foods to trigger my stomach and my skin condition called Rosacea. When a trigger does occur I get an intense burning sensation all over my facial area and it is quite painful. This causes me to be on a very restrictive diet. No alcohol, no caffeine, no dairy, no gluten, no sugar. Also accompanied with this is frequent indigestion, and dermatitis.⠀ ⠀ I discovered my condition when I was eighteen years old. At that time I was very bad off. I could not go into direct sunlight, wind, too hot, too cold, I was in constant pain in my stomach and my face, leading me to be a shut-in, in my dimly lit room for over a year. Lets just say this was the lowest part of my life and I felt hopeless. Honestly, my faith in God is what got me through, leading me to rely on Him for strength and healing. Most doctors would just make me worse or would say they couldn't do anything for me. But by Gods grace I was led to a homeopathic who gave me natural supplements for my stomach and a laser doctor who gave me treatments for my skin condition. I am doing better but not 100%.⠀ ⠀ Finding a cure would have a tremendous impact on me and my family! I wouldn't have to worry about what I eat and I could go with people to restaurants and actually eat there. I could be more involved in strenuous activities, and the frequent upsets in my stomach would be nice to get rid of. I could enjoy family and social gatherings without the strange looks of pulling out my lunch bag while everyone else enjoys their delicious meals. You'd be surprised how much food brings people together. So until that day comes when I no longer have this ailment I keep trudging forward, trying not to look back, with hopeful anticipation of a future without this condition that effects more and more people every year. #imthewhy ⠀ ⠀ -------------------- ⠀ ⠀ Read more stories like her's through the #linkinbio ⠀ ⠀ -------------------- ⠀ ⠀ #weneedacure #findacure #clinicaltrials #medicalresearch #reallife #truestory #true #medicine #huntingtonsdisease #hdawareness #awareness #research #readherstory #stor 10 ♡ 1 ✍ July 21

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SUPPORT • EDUCATE • INSPIRE Good Morning and Happy Friday!!! Here is a #fbf for you. Our team meets in Nashville with WAVE LIfe Sciences!#Nashville #Meeting #Help4HD #HDAwareness #huntingtonsdisease #Science #FindACure #NeuroScience #Friday #Support #Educate #Inspire 138 ♡ 0 ✍ July 21

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To all the HD and JHD Warriors around the world. #huntingtonsdisease #hdawareness #HDSTRONG #WatchingTheirDance 25 ♡ 0 ✍ July 21


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