aulapaolovi


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#aulapaolovi #vatican 17 ♡ 0 ✍ May 24

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It took a long time for me to have my "coming-out" about HD that affects my family from the first day of my life. Not easy to talk about it, explain, introduce, study it at Med school and hide my story. I felt guilty about all that, no cure is available, I'm a doctor right now but I am still powerless against it. People judge, they don't know what's going on in a HD family. Routine is messed-up, everything have to be re-invented, social obstacles are daily, no real help from the society. You have to carry on a sort of "condamn" on your shoulder, even if you're still young, you live as if you were 50yo because your responsabilities as a daughter are higher and higher every day. Not a lot of friends understand this situation so they leave. This meeting with the Pope was a great idea that helped me to coming-out and shout "hidden no more". I am not guilty for that, disability is a different perspective my family has. Thanks for every single family sat with us today. We know what's HD means everyday. #hdawareness #pope #vatican #vaticancity #meetthepope #popefrancis #thanks #neurology #hddisease #huntington #huntingtondisease #letsfight #community #global #medicine #psichiatric #lifeisbeautifularoundtheworld #research #genetic #huntingtondisease #togetherwearestronger #dontgiveup #vaticano #meeting #hddennomore #aulanervi #aulapaolovi #today #dontbescared #comeclosetome #perspective 31 ♡ 0 ✍ May 18

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In diretta per udienza di #papafrancesco dedicata alla #malattiadihuntington. "Mai più nascosti", mai più! #radiovaticana #Papa #Roma #Rome #radio #onair #vatican #vaticano #aulapaolovi 25 ♡ 2 ✍ May 18

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#pierluiginervi #aulapaolovi 9 ♡ 1 ✍ May 8

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Dia bescht Familie/Verwandtschaft ever... 😀 #schweizergarde #vereidigung #6mai2007 #vatican #aulapaolovi #whataday #erinnerigasiandschuöpisschüas 33 ♡ 0 ✍ May 6

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Hüt vor 10 Johr... 😀 #schweizergarde #vereidigung #6mai2007 #vatican #aulapaolovi #whataday #erinnerigasiandschuöpisschüas 46 ♡ 3 ✍ May 6

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#udienzapapaFrancesco#aulaPaoloVI (SalaNervi)#Vaticano#Roma# 9 ♡ 0 ✍ March 27

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Vatican's Moments 🙏 #pierluiginervi #aulapaolovi #architectureporn #concrete #dome @konstantin_grcic a #treasure #intown 🥅 #privatoromanointerno 73 ♡ 1 ✍ March 3

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Pope Francis. General Audience. 24 ♡ 1 ✍ February 9

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#papafrancesco "non creare muri ma ponti" 🌉#udienzapapale #aulapaolovi photo: Lucia ballester/ACI prensa 72 ♡ 0 ✍ February 8


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